NATIONAL FRAGILE X AWARENESS MONTH
July shines a spotlight on the most common form of inherited intellectual disability. National Fragile X Awareness Month includes a mission to support those with Fragile X while also celebrating the families who support them.
During the month-long observance, organizations around the globe promote fundraising, informational events and other activities that improve the lives of those with Fragile X. What is Fragile X? The syndrome is a mutation of the FMR1 gene. While it is the most common form of inherited intellectual disability, it impacts men more than women. Some people may have the gene mutation, but never show signs. Symptoms may also develop later in life. Those who do show signs may have mild or severe symptoms. Physical, intellectual and behavioral symptoms may appear, and they vary between males and females. Women tend to have similar but milder symptoms or none at all.
While testing and treatment are available, there is no cure and more research is needed. Through raising awareness, the day hope to further the search for a cure. On July 22nd, National Fragile X Awareness Day focuses on the month on the needs of those with Fragile X and the families who support them.
HOW TO OBSERVE #FragileXAwarenessMonth
Put families impacted by Fragile X first. Show your support and learn more about the syndrome. You can also take part in seminars, fundraisers, and awareness campaigns across the country. Other ways to celebrate include:
- Share something every day about Fragile X.
- Make a donation.
- Encourage your local clinics to host a seminar.
- If someone in your family is diagnosed with Fragile X, get tested.
Use #FragileXAwarenssMonth to share on social media.
NATIONAL FRAGILE X AWARENESS MONTH HISTORY
In 2000 and 2001, the U.S. Senate and House respectively passed resolutions in support of National Fragile X Syndrome Day. In recent years, the month-long observance has increased these efforts.