DUCHENNE MUSCULAR DYSTROPHY AWARENESS WEEK
During February 13-18, National Duchenne Muscular Dystrophy Awareness Week brings support to those with a progressive genetic disorder.
Because Duchenne muscular dystrophy (DMD) is a genetic disorder that affects the x chromosome, it primarily impacts boys. However, in rare cases, it can affect girls, too.
Our muscles require dystrophin to keep the cells together. The disorder causes muscle degeneration and weakness by causing changes to dystrophin.
In children, early signs include developmental delays in sitting, standing, and walking. They display progressive muscle weakness. Most children require a wheelchair by the age of 13. As they grow, other areas of health are impacted, such as the heart and lungs.
Research focuses on gene therapy with the hope of finding a substitute for dystrophin. Other research seeks ways to protect the muscle and help it to repair and regrow. Some research efforts have found their way to clinical trials.
While research and clinical trials continue, families continue to seek the care and support necessary and raise awareness along the way.
HOW TO OBSERVE #DuchenneMuscularDystrophyAwarenessWeek
There are several ways to show your support for the DMD community.
- Learn more about DMD.
- Support research efforts by donating.
- Ask questions and offer to join a family as they spread awareness.
- Advocate for someone with DMD or help them to be their own advocate.
- Join a fundraiser near you or start one that will help raise awareness each year.
- Attend an event where a DMD Ambassador is speaking to learn directly from someone with DMD.
Use#DuchenneMuscularDystrophyAwarenessWeek to share on social media.
DUCHENNE MUSCULAR DYSTROPHY AWARENESS WEEK
Parent Project Muscular Dystrophy founded DMDAW to show support for individuals and their families with Duchenne Muscular Dystrophy.