STURGE-WEBER SYNDROME AWARENESS MONTH

Sturge-Weber Awareness Month - May

STURGE-WEBER SYNDROME AWARENESS MONTH

During the month of May, Sturge-Weber Foundation encourages education, support, and increased awareness of this rare condition. 

Sturge-Weber syndrome is a congenital disorder caused by a gene mutation identified at birth by a facial birthmark. Other neurological symptoms associated with the syndrome affect vision and cause developmental delays and seizures. No matter the impact, the effects last a lifetime.

The entire month is dedicated to raising awareness, improving support for patients and their families, and targeting research for treatment. While symptoms vary and not all infants born with port-wine birthmarks have the same risk factors, further treatments and funding for education help advance the care patients receive.

HOW TO OBSERVE #SWSAwarenessMonth

  • Join events and forums raising awareness about Sturge-Weber syndrome.
  • Visit www.sturge-weber.org for more information. 
  • Use #SWSAwarenessMonth to share on social media. 

STURGE-WEBER AWARENESS MONTH HISTORY

We were unable to identify the source for Sturge Awareness month.