STURGE-WEBER SYNDROME AWARENESS MONTH
During the month of May, Sturge-Weber Foundation encourages education, support, and increased awareness of this rare condition.
Sturge-Weber syndrome is a congenital disorder caused by a gene mutation identified at birth by a facial birthmark. Other neurological symptoms associated with the syndrome affect vision and cause developmental delays and seizures. No matter the impact, the effects last a lifetime.
The entire month is dedicated to raising awareness, improving support for patients and their families, and targeting research for treatment. While symptoms vary and not all infants born with port-wine birthmarks have the same risk factors, further treatments and funding for education help advance the care patients receive.
HOW TO OBSERVE #SWSAwarenessMonth
- Join events and forums raising awareness about Sturge-Weber syndrome.
- Visit www.sturge-weber.org for more information.
- Use #SWSAwarenessMonth to share on social media.
STURGE-WEBER AWARENESS MONTH HISTORY
We were unable to identify the source for Sturge Awareness month.