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STURGE-WEBER SYNDROME AWARENESS MONTH

Sturge-Weber Syndrome Awareness Month - May

STURGE-WEBER SYNDROME AWARENESS MONTH

During the month of May, Sturge-Weber Foundation encourages education, support and increased awareness of this rare condition. 

Sturge-Weber syndrome is a congenital disorder caused by a gene mutation identified at birth by a facial birthmark. Other neurological symptoms associated with the syndrome affect vision, cause developmental delays and seizures. No matter the impact, the effects last a lifetime.

The entire month is dedicated to raising awareness, improving support for patients and their families and targeting research for treatment. While symptoms vary and not all infants born with port wine birthmarks have the same risk factors, further treatments and funding for education help advance the care patients receive.

HOW TO OBSERVE

Join events and forums raising awareness about Sturge-Weber syndrome. Visit www.sturge-weber.org for more information.  Use. #SturgeWeberSyndromeAwarenessMonth to share on social media. 

HISTORY

We were unable to identify the source for Sturge Awareness month.

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