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RARE DISEASE DAY USA – Last Day in February

Rare Disease Day USA - Last Day in FebruaryRARE DISEASE DAY USA

Rare Disease Day is observed the last day in February.

A rare disease is defined differently in different parts of the world. In Europe, a rare disease is one that affects fewer than one in 2,000 people while in the United States the standard is 1 in 200,000. While a majority of the conditions are genetic in origin, still others are the result of infections, environmental or degenerative factors.

Often people with rare diseases face a multi-faceted uphill battle; with few suffers, there are fewer voices to bring awareness to their needs for research, medical and financial support or their physical, social and often times mental burdens.

Rare Disease Day brings those voices together to help lift some of those burdens and bring awareness to light.

HOW TO OBSERVE

The goal of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and the impact that they have on patients’ lives. Use #RareDiseaseDayUSA to post on social media.

HISTORY

First observed in Europe in 2008, Rare Disease Day was established by Eurordis, (the European Rare Disease Organization).  In 2009, NORD was asked by EURORDIS  to sponsor Rare Disease Day in the United States.  NORD accepted and 2014 celebrates the 6th annual RARE DISEASE DAY USA.

For more information see: 
http://rarediseaseday.us/
and
https://www.rarediseaseday.org/

There are over 1,200 national days. Don’t miss a single one. Celebrate Every Day with National Day Calendar!

DATES
February 28, 2018
February 28, 2019
February 29, 2020
February 28, 2021
February 28, 2022
February 28, 2023
February 29, 2024

 

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