CORNELIA DE LANGE SYNDROME AWARENESS DAY
Observed annually on the second Saturday in May, Cornelia de Lange Syndrome Awareness Day sheds light on this often misdiagnosed, little-known syndrome.
Cornelia de Lange Syndrome (CdLS) causes a range of physical, cognitive and medical challenges. It is a genetic disorder that even though present at birth, it is not always diagnosed at birth. Affecting the physical and intellectual development of a child, CdLS is often known as Bushy Syndrome or Amsterdam dwarfism. CdLS can lead to severe developmental abnormalities affecting an estimated 1 in 10,000 to 30,000.
For more information regarding CdLS day visit the CdLS Awareness Day website.
HOW TO OBSERVE
Use #CorneliaDeLangeSyndromeAwarenessDay to post on social media.
Founded in 1989, National CdLS Awareness Day was created as an opportunity to educate everyone about this often misdiagnosed condition. For more information on CdLS visit www.cdlsusa.org.
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